Monday 7 April 2014

#GetYourBellyOut for Inflammatory Bowel Disease Awareness

When one of Madhouse Daddy's family members was diagnosed with Crohn's disease last year, everyone rushed to google to look it up because nobody knew what it is. Therefore, when I was asked to help spread the word about a new social media campaign to raise awareness and funds to support research into finding a cure for IBD, I was happy to get involved. Read on for more information about the #GetYourBellyOut campaign.



Unless you’ve been living in a cave for the past month, you will have seen the widespread cancer campaign #NoMakeupSelfie which has been covered online, in press and on your TV. Women have been ‘sharing’ their natural skin selfies, in a bid to raise awareness for Cancer.

The amazing NoMakeUpSelfie campaign raised funds and awareness for Cancer sufferers and their families, it was admirable. Following in their footsteps, a small team decided to do the same for Inflammatory Bowel Disease (IBD), namely Crohns and Ulcerative Colitis - both of these diseases are debilitating, sometimes life-threatening, often humiliating…..and very few people have heard of them or know anything about them. This was to change with the #GetYourBellyOut social media phenomenon!

It all began on March 23rd, when Derbyshire based Marketing Manager, Sahara Fleetwood-Beresford decided she needed to do something to raise awareness of IBD, she wanted to make a difference.

Along with some of the other members of the team working on this campaign, Sahara suffers with Ulcerative Colitis. This is a relatively unknown and ‘invisible’ chronic condition which affects the colon, the large intestine (bowel) and rectum, which often becomes inflamed, causing severe ulcers on the lining of the colon. It is an auto-immune disease which can trigger complications such as infections and long-term health issues. Sometimes surgery is the only option, sections of the intestines are often removed, especially in regards to Crohns disease which affects the entire digestive system. The symptoms are downright nasty. Someone who has Colitis or Crohns can expect to spend vast amounts of time either searching for or being stuck in a toilet. Imagine the nastiest sickness and diarrhoea bug you've ever had and imagine dealing with that on a permanent basis, with the addition of blood loss so severe it can cause anaemia. If you're lucky, doctors find medications to manage the disease and the symptoms become controllable - if you're not lucky, the only route available is surgery. Often the medications have serious side effects that can be as upsetting as the disease itself.

Unfortunately these diseases are often confused with IBS which is a much milder and overall manageable condition. Colitis and Crohns Disease are totally incurable… to date. Colitis issues can be eased if a colosotomy bag is used to bypass the bowel, although the malfunctioning immune system can still lead to further symptoms such as chronic arthritis, to name just one.

Crohns and Colitis is the UK association for IBD, providing information, support and guidance to sufferers and their families. They also work hard to raise funds which they hope will eventually lead to a cure for IBD. The problem is how to raise funds for, and awareness of, a disease that so few people are willing to talk about because of the horrible nature of IBD and its symptoms. Early in the campaign, Sahara decided it would need to be a campaign that got as many people as possible involved and it had to be something that didn't involve financial outlay. Small enterprises cannot afford huge expensive awareness campaigns.

We decided on something simple and effective.

Everyone from the IBD community was encouraged to upload a photograph of their ‘belly pics’ alongside the hashtag #GetYourBellyOut onto social media sites such as Facebook and Twitter. They were also asked to text and donate IBDA99 to the dedicated number 70070 if they so wished. The goal was to raise awareness and to support research into finding a cure. People without IBD who had a passion to help find a cure and to tell other people about it were also asked to join in.

A dedicated team of people joined Sahara and have all worked very hard to co-ordinate this project. Gemma Willingham and Lorna Haymes both have Crohn's disease and Victoria Marie and Kay Wilkinson have Ulcerative Colitis. Despite the daily struggles, they have fought on with the #GetYourBellyOut campaign and have helped so many IBD patients come together with a common cause in mind: finding a cure for IBD and telling people about what it's like to have Inflammatory Bowel Disease.

Sahara says of the #GetYourBellyOut campaign, which has now gone global : “What started out as a campaign to raise awareness of an invisible illness that so many people suffer with in silence has now become a unifying and inspirational campaign. So far we have raised over £2,000 which will help fund research to find a cure for these debilitating and, so far, incurable diseases – Crohns and Colitis – as well as helping the community find a voice!”

You can help raise awareness too by visiting the Just Giving page or text code IBDA99 (Inflammatory Bowel Disease Awareness) as well as texting donations to 70070. Here is the Just Giving link: You can also upload a belly photo with the hashtag, post a blog, tweet about the campaign, follow on Twitter @GetYourBellyOut or join the #GetYourBellyOut Facebook Forum.

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  1. I was diagnosed with crohn's last year too! It is in my small bowel too and I have to watch my diet! I hate it as the pain can be unbearable during flare-ups! I wouldn't wish it on my worst enemy!

  2. My niece was diagnosed (eventually) with crohn's last year. She was in hospital rapidly losing weight for 6 weeks before they managed to diagnose what was wrong and that was after a few weeks of the doctor fobbing her off. Luckily it doesn't even seem to bother her any more but they have said it could flair up in her teens. Well done you for trying to highlight this condition. Perhaps with more awareness she would've been diagnosed earlier

  3. It is definitely a condition that people don't know much about so raising awareness has to be a good thing

  4. You're an absolute star for posting this, it's a disease that so few people know about and it can be absolutely devastating if you're diagnosed with IBD. Hugs. Kay


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